So I had my follow up visit with the gyne specialist last Friday.
Here’s the skinny. I do not have planus lichen (SO glad I went ahead with the biopsy!) Instead I have a ‘chronic inflammatory skin condition’ of the vulva. Basically, she said that the technician could see that I had a chronic inflammatory condition from the tissue sample.
The worst inflammation, according to her, is right where the red is in this drawing. Do you think that it’s a coincidence that I have a chronic inflammatory condition right at the site of the most serious physical injury I’ve ever had? Nope. Me neither.
Luckily, even though it’s not something with it’s own name, there is a treatment. She gave me a prescription for a really strong steroid ointment. I use a tiny amount on the ‘affected area’ as it says on the jar, and then wash my hands really well, since we don’t want them getting ‘treated’.
I am to use it once a day until my vulva is no longer inflamed, to a maximum of a month, and probably about two weeks. You apparently don’t want to use this steroid daily for longer than that or it makes the skin thin.
After than I am to keep the ointment to use for flare ups, and can use it up to twice a week.
The good news is that it seems to be working. My vulva feels different, not sure exactly how yet. My wife says it looks a lot better and less red. I have had one flare up since I started using it, a bad one, but since I’m having a lot more sex now than I used to, that isn’t entirely surprising.
On the poly relationship front, I have a wife and a girlfriend. Who have met one another. And who seem to like one another. I spend weekdays with my wife and weekends with my girlfriend. My wife also seems to be getting her sex drive back. Yay! This is a very good time to have a well functioning vulva.
Here’s an excerpt from the typed page I’m giving to the Ob/Gyn specialist later this morning:
“What I am here for:
1) My goal is to improve my ability to mitigate the impact of my injuries on my sex life and daily level of pain and discomfort. I’d like help to figure out how not to have any pain at all on a daily basis. I also would like to have a clear understanding of the damage (tearing, vascular, nerve?) so that I can modify sexual activities to have pleasure and avoid pain, and to comfortably and pleasurably have sex more frequently.
2) Is there anything about my physiology following the injuries that makes it more likely for me to experience vaginal infections or pain around my urethra. If so, what can I do as self care to compensate for this? (I already do all the usual things – cotton panties, no douching, no scented products)
3) I would like a very thorough assessment of what damage was done by the assaults. Where any tearing might have happened. My research indicates that vaginal injuries in childhood tend to heal without scarring, and the fact that I have scars suggests either repeated or deeper damage, so it’s possible there were other injuries that are not as apparent. Children who are raped apparently typically tear toward the anus, and my scars are in the other direction. I’d like to know specifically where any tears are, were or may have been, where any scarring, nerve damage or vascular damage is and where any flesh tags are. I think this information will help me work around them and mitigate them
4) I would like to discuss the possibility of removing any flesh tags that are getting rubbed during penetrative sex and what the impact of that might be.”
I feel really calm, centered. I had a little cry in the shower this morning, but it was full of gratitude for the support and for the women and men who are walking beside me in this. I know that the Goddess has my back. I am meeting more and more survivors who have experienced vaginal damage. Women, I am doing this for me, but I am doing it for you too. Thank you for walking beside me in this. May we all be blessed. May we all outlive our abusers and dance on their graves.